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Lymphangiomatosis and Gorham's Vanishing Bone Disease
This page is made by a small family in Denmark, because our son has been diagnosed with the "Gorham's Vanishing Bone Disease" or "Lymphangiomatosis" These two diseases are very similar to each other, some even say that it is the same disease, but fortunately for us, the treatment is the same. We will try to make this page as informative as possible so others will have a chance to find out what this is all about. We now have a good site running, but we are still working on the site, but take a look around, and please contact us, so that we can exchange experiences.
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